Documentary
What is it like to live with a disease that officially barely exists? Patients and international specialists tell their story.
About this site
On this website you will find information for patients and professionals about Lyme disease, its treatment and its impact on our society.
Specialised international doctors and researchers are achieving success with new guidelines for the treatment of chronic Lyme. In the Netherlands these are not yet accepted and treatment is not reimbursed. As a result, patients are often left to fend for themselves.
What is Lyme disease, how is it transmitted and what are the symptoms?
International guidelines, antibiotics and complementary treatments.
The fight for recognition of chronic Lyme in the Netherlands and Belgium.
What the disease means for patients, families and society.
The film
Director Pim Giel shows what it is like to live with this misunderstood disease: paralysis, pain and spasms, but also children taken into care, misdiagnoses and benefit problems.
Ambassadors and former Lyme patients Miro Kloosterman, Pete Philly, John Crombez and Roos van Acker call for more attention and recognition.
Watch the documentary
PRESS RELEASE NEW LYME DOCUMENTARY LAUNCH Lyme disease is a terrible disease and also the fastest growing epidemic in the world; difficult to detect and treat. The lack of funding, treatment options and social attention
Before you start reading, it is important to know that if you are a carrier of the bacteria, this does not mean you will immediately get sick. As long as your immune system remains strong, there is nothing to worry about
This is my first national interview where I speak frankly about what Lyme was like for me and how the lack of acknowledgement and help for people who have this disease almost made me lose the roof over my head. (Pete Phi